SPARK: Robin Williams and His Battle with Lewy Body Dementia
The LBDA documentary "SPARK" is now available to view for FREE on Mediflix.com. Click the image above to be directed to the video. You will have to create a Mediflix log-in and password first.
The LBDA is using this educational film to disseminate information about Robin Williams and his battle with undiagnosed Lewy body dementia to promote community and professional awareness and education to those affected by LBD. This documentary provides a deeper dive into the disease including its biology, clinical symptoms, and its impact on both the person with LBD and the primary caregiver(s).
Click here to view here to access the SPARK Online CME Course through the Mayo Clinic.
Click here is a link to additional LBDA outreach educational videos.
LBDA Lewy Line – 800-539-9767
Need Help or support? Living with a loved one with Lewy Body Dementia? Are you a professional who works with LBD patients?
The Lewy Body Dementia Association is here to help!
The Lewy Line is a helpline specifically for those living with LBD and their loved ones. It is also helpful for professionals supporting individuals with LBD or presenting symptoms. LBDA Support Services staff and trained volunteers can provide guidance and resources as well as to connect you with support opportunities.
If you are seeking information on care options in your local area, you may wish to call the Eldercare Locator at:
or visit their website by clicking here.
Understanding Lewy Body Dementia
Lecturer: Dr. Jori Fleisher, MD, MSCE, FAAN
Join Dr. Fleisher, Associate Professor of Neurological Sciences and Director of The Lewy Body Dementia Association Research Center of Excellence at Rush University. She offers an excellent lecture available on Mediflix.com. Click the image above to be directed to the video. You will have to create a Mediflix log-in and password first.
This lecture will help both healthcare professionals as well as patients and families living with Lewy Body Dementia. LBD is the second most common cause of progressive dementia after Alzheimer’s disease, impacting an estimated 1.4 million people living in the United States.
Dr. Fleisher explains the complexities of this often misdiagnosed form of dementia and how it differs from Parkinson’s disease. She discusses symptoms, current treatment options and common challenges.
LSVT Global and the Lewy Body Dementia Association join in a collaborative webinar.
Join a host of LSVT BIG and LOUD faculty:
Did you know LBD is the second most common form of neurodegenerative dementia after Alzheimer’s disease? Learn more about this complex condition and how PT, OT and SLP can comprehensively address the needs of clients with LBD. Hear from a Movement Disorder Specialist who will provide an overview of the condition, followed by evidence-based treatment strategies for PTs, OTs and SLPs to promote successful person-centered care. The therapist panelists provide a Q&A session following the presentation and case study.
Presented by Dr. Jennifer Goldman and Julia Wood, Occupational Therapist (OT).
LBD? PDD? DLB? What’s in a name - a lot of confusion! Join us to unpack and gain a better understanding of these complex conditions and how they relate to one another.
A movement disorder specialist will outline the diagnosis, symptoms and treatment of Lewy body dementia and an occupational therapist will provide guidance on how occupational therapists, physical therapists and speech language pathologists can help you live your best life with Lewy.
Parkinson & Movement Disorder Alliance is a nonprofit organization providing people with Parkinson's and other movement disorders as well as their care partners opportunities to learn, live life more fully and connect with other.
LSVT BIG & LOUD Programs are customized to each person's specific needs and goals. Thus, they can help patients regardless of the stage or severity of your condition.
LSVT LOUD is an effective speech therapy treatment for people diagnosed with Lewy Body Dementia (LBD) and Parkinson's disease (PD) and other neurological conditions. LSVT LOUD trains people with LBD and PD to use their voice at a more normal loudness level while speaking at home, work, or in the community.
LSVT BIG: People living with LBD and PD often have smaller and slower movements, which may result in difficulty dressing, walking and/or getting into and out of a chair. The treatment improves walking, self-care and other tasks by helping patients to “recalibrate” their muscle movements.
Click the image above to find find more and to locate an LSVT clinician in your area.
GET THE FACTS ABOUT LEWY:
Introduce those you care about to the facts about Lewy Body Dementia
DIAGNOSING AND MANAGING LBD FOR HEALTHCARE PROFESSIONALS
Download this comprehensive 28-page guide to assist healthcare professionals in serving DLB patients and their families. The guide covers the LBD Spectrum, pathology, risk factors, genetiss, research, symptoms, the neurological exam, cognitive, motor, autonomic and psychiatric assessments and much more.
INFORMATION FOR PATIENTS, FAMILIES & PROFESSIONALS:
This is a 44-page comprehensive booklet that discusses the basics of LBD, diagnosis, risk factors, symptoms, treatment options for LBD. A list of resources is provided along with some advice for family living with loved ones diagnosed with LBD.
COMPREHENSIVE INTRODUCTION TO LBD FOR FAMILIES
The LBDA offers a FREE downloadable booklet which provides a comprehensive introduction to Lewy Body Dementia for Newly Diagnosed Patients and their families. A new diagnosis of dementia is very frightening. Simply stated, it means a decline in mental functions that affects daily living. With Lewy body dementia (LBD), dementia is the primary symptom but is only one component of the disease. When you live with dementia, you and those around you will have to adapt to your changing abilities. This booklet will help you and your family understand your loved one's LBD diagnosis and help you prepare for the changes ahead.
UNDERSTANDING BEHAVIORAL SYMPTOMS
Some behavioral symptoms of LBD are subtle and may go overlooked for some period of time. Other symptoms are easily recognizable the first time they occur. Here are some examples of the kinds of behavioral symptoms seen in LBD:
LBD is a multi-system disease and typically requires a comprehensive treatment approach, meaning a team of physicians from different specialties, who collaborate to provide optimum treatment of each symptom without worsening other LBD symptoms. A comprehensive treatment plan may involve medications, physical, occupational, speech or other types of therapy, and counseling.
DIAGNOSTIC SYMPTOMS - A PATIENT CHECKLIST
Add a check mark next to any symptoms you are experiencing. Bring this form with you to your next appointment or send it to the doctor in advance.
Lecturer: Julia Wood MOT, OTR/L
Please join Julia Wood, the Director of Professional and Community Education at Lewy Body Dementia Association, Inc. She will discuss how to correctly define Lewy Body Dementia (LBD) and explain how this condition differs from Alzheimer’s Disease. Julia will also discuss symptomology and identify three multidisciplinary team members who may be effective referral resources for long term treatment management of patients with Lewy Body Dementia. For more information please visit the Lewy Body Dementia Association website here: https://www.lbda.org/ Please SUBSCRIBE to our YouTube Channel to help us continue to help others!
Lecturer: Sara L Wolfson, DNP, APRN
Sara is a Gerontological Nurse Practitioner who practices at Nebraska Medical Center in Omaha, NE. She specializes in dementia care and palliative care.
Sara will lend her expertise and offer insight into how to engage in conversations with patients who have serious illness or who are approaching end of life. She will help clinicians develop a framework for thinking about how to structure such conversations, and she will describe several key skills to approach these discussions with honesty and compassion. This lecture will help APPs who are working in many speciality areas, such as Primary Care, Internal Medicine, Palliative Care, Gerontology, Neurology and Cardiology.
Lecturer: Matthew Estrade, MA, MBA
Matthew is a gerontologist from Louisiana. He has been a care partner support group facilitator since 2015. He has facilitated over 250 sessions for the Council on Aging in St. Tammany Parish (county) in Louisiana.
Matthew built www.DementiaRosary.com, an educational platform which offers daily videos, weekly blog articles, and monthly live Rosaries. All of these activities are described in his book:
Matthew discussed how to launch dementia support groups within your medical practice, hospital or local community.