Dementia Resources

 Click the image above to watch a premier video presentation, posted with permission, from The Penn Memory Center, research dept at the University of Pennsylvania's 

Empowering Caregivers Workshop Series 

University of Pennsylvania, Phila, PA. 

Alison Lynn, LCSW from the PMC hosts Rachel Wiley MS, OTR/L, CDP, owner and Founder of  Day by Day Home Therapy https://www.daybydayhometherapy.com

to discuss managing difficult behavioral symptoms in patients with dementia. Rachel will teach how to identify causes of behavioral symptoms using the Triadic Model, offer advice to help caregivers develop strategies to reduce  challenging behaviors, such as: resistance  to receive help with care and unwillingness to stop driving. 

The Role of Neuropalliative Care in FTD

Click the image above to watch this amazing webinar delivered by Dr. Christina Vaughan, MD, through The Association for Frontotemporal Degeneration (AFTD).

This AFTD Educational Webinar defines neuropalliative care and its role in managing  symptoms and improving quality of life for  patients with FTD. Dr. Christina Vaughan, M.D., of the University of Colorado, discusses the difference between palliative care and hospice. She explains the role both play in comprehensive FTD care. Dr. Vaughan also explains how families and patients can access neuropalliative care.

 The Association for Frontotemporal Degeneration (AFTD), also has  many other educational webinars available to help patients and families cope with this oftentimes devastating disease on their website, which can be accessed here: 

https://www.theaftd.org/

Click the image above to link to the "Rare Dementia Support" educational resources  webpage. You will find many valuable resources, such as factsheets, interactive courses, videos, podcasts and lectures. 

Rare types of dementias may start with  symptoms such as problems with vision, language, movement and behavior, while memory is spared. Examples are: 

• Posterior Cortical Atrophy (PCA)
• Frontotemporal Dementia (FTD)
•  Lewy Body Dementia (LBD)
• Primary Progressive Aphasia (PPA) 

These resources are designed for patients, families, caregivers and medical professionals. This page is funded by The National Brain Appeal in London. 

   Lecturer: Sharon Best, PA-C, MHS

Sharon is a Physician Assistant who  specializes in two distinct areas of medicine: Cognitive Neurology &  NaProTECHNOLOGY. 

 From 2018-2021, she was sub-investigator on multiple clinical trials and she saw patients in the clinic at the Penn Memory Center at the University of Pennsylvania.  

Learn how to interpret brain MRIs. Even if you don't work in the speciality of dementia, this lecture will help all providers improve their skills in  interpreting MR brain imaging. Sharon will guide you with tips and tricks to recognize as you cross sulci and move through different lobes. You will also learn to recognize common areas mentioned in radiology reports and improve your skills to recognize various deep brain structures. 

   Lecturer: Sharon Best, PA-C, MHS

Sharon is a Physician Assistant who  specializes in two distinct areas of medicine: Cognitive Neurology &  NaProTECHNOLOGY.   From 2018-2021, she was sub-investigator on multiple clinical trials and she saw patients in the clinic at the Penn Memory Center at the University of Pennsylvania.

Learn to interpret MRIs and PET Scans in patients with dementia. This lecture is a sequel to Sharon's "MRI Interpretation for Dementia - ANATOMY".  However, even if you missed the former lecture, you will be able to easily follow this discussion. Sharon will discuss  common dementia syndromes and correlate the history, physical exam, cognitive testing, MRI findings and PET scan imaging to support the different diagnoses.

Lecturer: Sharon Best, PA-C, MHS

Sharon is a Physician Assistant who  specializes in two distinct areas of medicine: Cognitive Neurology &  NaProTECHNOLOGY.   From 2018-2021, she was sub-investigator on multiple clinical trials and she saw patients in the clinic at the Penn Memory Center at the University of Pennsylvania.

During this lecture you will learn to recognize the root criteria required to make a diagnosis of Primary Progressive Aphasia. You will also learn to recognize criteria required to correctly diagnosis each of the different variants, ie: Semantic (svPPA), Logopenic (lvPPA) and Non-Fluent/Agrammatic (nfPPA). Focus will be placed on bedside testing, MR Imaging and FDG PET interpretation through case studies. 

Lecturer: Lauren Massimo, PhD, CRNP  

Lauren is an assistant professor in the school of Nursing at the University of Pennsylvania. She is an avid researcher, and she sees patients in the Cognitive Neurology Clinic. Lauren specializes in neurodegenerative diseases such as Alzheimer’s disease, Frontotemporal degeneration, and Amyotrophic Lateral Sclerosis 

Do you have a loved one who is suffering from  dementia? Almost everyone does. Join Lauren Massimo to learn about   Alzheimer disease and related dementias (ADRDs). She will discuss how to recognize common presenting signs and symptoms to help you differentiate between diagnosis of neurodegenerative diseases in the clinical setting.

Lecturer: Sara L Wolfson, DNP, APRN  

Sara is a Gerontological Nurse Practitioner who practices at Nebraska Medical Center in Omaha, NE. She specializes in dementia care and palliative care. 

Sara  will lend her expertise and offer insight into how to engage in conversations with patients who have serious illness or who are approaching end of life. She will help clinicians develop a framework for thinking about how to structure such conversations, and she will  describe several key skills to approach these discussions with honesty and compassion. This lecture will help APPs who are working in many speciality areas, such as Primary Care, Internal Medicine, Palliative Care, Gerontology, Neurology and Cardiology.

Lecturer: Matthew Estrade, MA, MBA

Matthew is a gerontologist from Louisiana. He has been a care partner support group facilitator since 2015. He has facilitated over 250 sessions for the Council on Aging in St. Tammany Parish (county) in Louisiana. 

Matthew built  www.DementiaRosary.com, an educational platform which offers daily videos, weekly blog articles, and monthly live Rosaries. All of these activities are described in his book: 

The Peace With Dementia Rosary: Education, Intentions, Community

Matthew discussed how to launch dementia support groups within your medical practice, hospital or local community. 

Lecturer: Lecturer: Julia Wood MOT, OTR https://app2app.org/ Please join Julia, the Director of Professional and Community Education at Lewy Body Dementia Association, Inc. She will discuss how to correctly define Lewy Body Dementia (LBD) and explain how this condition differs from Alzheimer’s Disease. Julia will also discuss symptomology and identify three multidisciplinary team members who may be effective referral resources for long term treatment management of patients with Lewy Body Dementia. For more information please visit the Lewy Body Dementia Association website here: https://www.lbda.org/ 

Lecturer: Dr. Katherine Amaodeo, MD https://app2app.org/ https://www.lbda.org/ 

Please welcome Dr. Amaodeo as she delivers a presentation on the adaptation of the DIAMOND Lewy UK toolkit for a US based toolkit for management of the key features of Lewy Body dementia.   

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Lecturer: Lecturer: Lauren Massimo, PhD, CRNP https://app2app.org/   Please welcome back Lauren Massimo, PhD, CRNP, Associate Professor and Co-Director of the FTD Center at the University of Pennsylvania, as she discusses Frontotemporal Degeneration (Frontotemporal Dementia) FTD. Lauren will proved an overview of FTD disorders, such as behavioral variant FTD and Primary Progressive Aphasias. She will discuss non-pharmacological strategies for managing behavioral symptoms, including but not limited to strategies to help with speech and language symptoms. Lauren will also discuss the psychosocial needs of persons with FTD and their caregivers.